Learn How to Choose Caregivers for SMA Patients
The genetic health condition called spinal muscular atrophy (SMA) affects that part of the nervous system that controls voluntary muscle movements. There is wide variability in the age of the onset, rate of progression, and even symptoms of the condition. For individuals diagnosed with SMA, it is not that easy to roll out of the bed and start the day. However, when a patient has a caregiver’s assistance along with the right medical equipment, it helps a lot to carry out daily activities like showering, dressing, going to the toilet, and even eating. Even though in the early stages of the condition, the family members themselves act as the primary caregivers for SMA patients, it is usually not so in the long run. This is because as the condition progresses, one does need professional caregivers for SMA patients as they help to take care of numerous things. When one is planning to hire caregivers for SMA patients through an agency, they need to ensure that the caregivers hired are trained professionals. Below are some tips that will help one hire a professional caregiver for SMA patients- Have a conversation with the insurance providers and social work departments One needs to realize how many hours will be allotted to the SMA patient by the government before hiring caregivers. While building a case, it is necessary to talk to the insurance provider and a qualified social worker. As the condition tends to vary from person to person, so does the level of help they need. There are some SMA patients that need 24*7 caregivers assistance while there are others who only need someone who can help them get up and get ready in the morning, and put them to bed at night. One needs to determine the level of care their family member needs and communicate the same to their social worker or any other type of independent living department with whom they are working.